Monday, July 25, 2011

Meet Evangeline...


Dear Friends and Family,


We wanted to take this opportunity to introduce you to our daughter, Evangeline Faith Wilson.  She is our beautiful baby girl and her due date is December 1, 2011.   

We are introducing you to her now because unfortunately she has been diagnosed with a severe chromosomal defect called “Trisomy 18”.  You can google the details yourself to find out more about it if you like.  Trisomy 18 has a very high infant mortality rate and is “incompatible with life”, which is doctor-speak for saying her likelihood of survival after birth is very low.  We had a preliminary screening test done which showed we had a high likelihood of Trisomy 18 in our little girl.  These results prompted a special ultrasound at a neonatal clinic in Pensacola.  The sonogram showed large cysts on Evangeline’s brain and a large hole in the pumping chambers of her heart, both of which are indicators for Trisomy 18.  We had an amniocentesis performed that same day and we got the results a few days later confirming the presence of Trisomy 18.  This is a tough time for our family as we deal with the news and it’s consequences.  Cheyenne and I want to carry the pregnancy to full term and we will do all that we can to protect the beautiful life that God has given us.  We have many questions that have no definite answers.  There is no way to know when Cheyenne will go into labor or Evangeline’s health at birth.  It is a day-to-day journey right now and we are thankful for every tiny kick and everyday that Evangeline is still with us.  We are thankful that Cheyenne is in no danger from the pregnancy and that we have the opportunity to share our little girl with you, even if only for a short time.  We rest in the comfort of knowing that there are no mistakes; God has given us little Evangeline for a reason.  We do not know God’s plan, but we do know that he loves us and his plans are not to harm, but to benefit us (Jeremiah 29:11).  We rest assured in the comfort of God’s embrace knowing that Evangeline’s life is part of His design and something we view as a tragedy, God can use as a blessing.  A lot of folks have asked what they can do.  Honestly, your prayers and friendship are all that we ask. We ask for you to pray specifically for: Evangeline’s health, Cheyenne’s emotional strength, a safe delivery, wisdom and grace for Cheyenne and I, Evangeline’s life to lead people to Christ, understanding how God can use this in our lives to bring glory to Him, and trust and faith in God and His design.  If you feel led to do more than pray, there are several non-profit organizations for children with chromosomal defects that you can become involved in or donate to.  We will post on Cheyenne’s blog, www.cjwilson34.blogspot.com and send out more emails as information develops.  Thank you all for your friendship, support, and prayers.





Photobucket& John

11 comments:

Jenny Brooks said...

I will be praying. Thank you for showing God's strength in you both during this difficult time. It will bring the Glory to our Creator that you speak of.

Kate said...

There's nothing I'd like to do more than give you a big hug, Cheyenne. John, thank you so much for sharing Evangeline with us. XOXO

Anonymous said...

I will most lovingly pray for all of you! May God's strength remain in your hearts. And what a beautiful name you have given her!

The Grey's said...

God has a plan, I am so inspired that you can already recognize it in these difficult times. Your faith amazes me every day!
Loves and hugs-Erin & CC

Melissa Fulmer said...

My heart goes out to you and your family at this difficult time! We will be praying for your strength and especially baby Evangeline!

Jenn said...

I am so sorry to hear this, Cheyenne. You are all in our thoughts and prayers. Please know I am always around if you need any help with the kids.

Jenn Betts

Penny Michaud said...

Prayers for you and your family. Evangeline is very special. I know this because of my daughter,Peyton, who whose born with Full T18. Peyton survived 19 glorious months. She was so happy and full of life. An angel here on earth. If you ever need to talk or have any questions, I'm always here for you. So you know, Susie Dunn and Tami Sanders are friends of mine.

Carrie said...

Cheyenne, I didn't even know you were preggo again. I'm so sorry to hear about Evangeline. I'll be praying for your entire family. Love to you all. Carrie

JonandLo said...

Oh Chey...I am so sorry to hear this. I am also impressed by your strength and faith. I know too that God has a plan and in staying close to Him we can have peace and more understanding. We are praying for you and your family.

Amy :) said...

Wow, we will definitely be praying for you guys, even though we don't personally know you. I can't relate to what you are going through exactly, but I do know that He carried our family through the death of our 6 month old daughter, Jessica, 15 1/2 years ago.

We really felt God's arms wrapped around us in tangible ways through the love & care of His people all around us. I pray that He will do the same for you in this scary journey you are on.

In Christ~
Amy & Matt and family :)

Michael Griffin said...

John, I am at a lost as to what to say. You and your family are in my prayers. John, as a brother in Christ I love you man. Y'alls faith is inspiring. You and your family will always have a place to stay in Abilene if you need it. If there is anything I can do, please let me know. God speed, Michael Griffin